• alaxitoo@lemmy.world
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    1 year ago

    This happened with my mum but with breast cancer, ended up dying because of it, very infuriating

  • half_fiction@lemmy.dbzer0.com
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    1 year ago

    I’ve never tried this, but advice I’ve seen online is if your doctor won’t order testing, ask them to note in your chart that they are declining testing. Apparently the implicit threat of a lawsuit if they’re wrong is enough to kick at least some of them into CYA mode.

    • OtakuAltair@lemm.ee
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      1 year ago

      On that note, why would they decline tests in the first place? You’re the one paying.

      • godzillabacter@lemmy.world
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        1 year ago

        Pharmacist and 4th year medical student here. Medical tests are ordered based upon their statistical ability to alter your likelihood of a diagnosis. No test is perfect in either direction (negative result meaning you don’t have disease or positive result indicating you have disease). Tests cost money, take resources of the healthcare system, and have the potential to be wrong. When a test is wrong, it can result in financial, emotional, and physical harm to an individual.

        Example: you’re an otherwise healthy 34 year old and you feel a little under the weather and are coughing. It’s only been going on a few days, mild fever, but you’re worried and you go to the doctor. Your doctor thinks this is most likely a viral infection, recommends Tylenol and ibuprofen and sends you home. You imply to the doctor you’ll sue if you don’t get antibiotics and a chest x-ray just to be safe. The doctor, rather than argue with you when they have a dozen other patients to see, just orders the stuff and moves on. The chest X ray doesn’t explain your cough, but there’s a small lesion of undetermined significance on the X-ray. Now you need a CT. The CT says “probably a self-limited granuloma from a fungal infection, can’t rule out cancer, correlate with biopsy”. Then you have to go get sedated, put a camera down your throat, and have a pulmonologist take a sample of your lung to see if you have cancer. Maybe you end up with a complication from the sedation or a pneumothorax. Meanwhile the antibiotics you took didn’t really improve your cough but now you have this uncomfortable itchy rash. Are you allergic to the amoxicillin? Or did you just develop the typical rash seen in people who have mononucleosis that also take amoxicillin? Will you get allergy testing for the amoxicillin? Just avoid amoxicillin, an awesome antibiotic, for the rest of your life?

        We are restrictive in our prescribing of medications and tests not because we don’t care about you, not because we want to save the hospital or the insurance company money (in fact the hospital prefers we order more things because they make money on testing). We are restrictive because we want to maximize benefit while minimizing risk, and everything we do has risks and benefits.

      • DrQuint@lemmy.world
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        1 year ago

        Earlier on Lemmy’s life, there was someone here telling people of how many fake reddit stories they had written to places like Am I The Asshole using numerous alts.

        And how they were convinced of doing it because they were an editor, and they were used to seeing so much badly written anecdotes with no respect for narrative or proper focus on details of importance… Until Reddit hapenned and flipped that. It was a source of far too many interesting and well edited stories and something was off. They were certain that the average person with a story to tell was far less educated in English, far less capable of shorthanding detail, than what Reddit had to offer on average, and the answer was that people were just using it as a creative writing exercise platform. So, they used it that way too, since they wanted to bea fiction writer.

        • Zagorath@aussie.zone
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          1 year ago

          That’s an interesting theory they had, but I’m not sure their evidence necessarily followed.

          The upvote/downvote mechanism and the Reddit alogithm mean that the stuff that you’re most likely to see is not necessarily “the average person with a story to tell”. Because if they’re a bad writer, people are more likely to downvote it. It’s a sort of sampling bias.